Genevieve Takes On The World

Good Friday Appeal 2025

Easter Monday 2019 just days before Genevieves 1st birthday was the moment our lives were about to change, and we had no idea what we were in for. To this day, the days all rolled into each other: the blur of beeping, signing consent papers, doctors talking, repeating our story a million times, being moved into an ICU room, people visiting, trying to recall what we had done the last few days to work out if anything could be the cause, the lack of sleep, the microsleeps, the tears 😢 It’s something as a parent you never want to go through and would never ever wish it upon anyone. But once you become a 'hospital parent', for me I feel your perspective changes on a lot of things. Genevieve has spent a lot of time at The Royal Children’s Hospital with a lot of different teams looking after her. These teams have all been amazing both during her admissions and before and after. Genevieve has dealt with Gastroenterology, Genetics, Metabolic, Immunology, Allergy, Dietician, Ophthalmology. She has had surgery on her liver, as well as a Port put in. Been put through ultrasounds and x-rays, countless blood tests. Genevieve spent her 1st Birthday in ICU at the RCH. After falling ill and being in Acute Liver Failure. Since then, she has had multiple other admissions both in the ICU and on the Cockatoo Ward. With the help of the specialist teams, doctors and nurses at RCH, Genevieve is still here with us today, happy, and healthy most of the time. We are in regular contact with these teams and will continue to be in contact with them for years to come. Genevieve has a rare condition, where she can go into acute liver failure if she gets a fever. She has a gene mutation called NBAS, which sets this off, however we do not know the tipping point of when the acute liver failure begins or how many times it can occur before it stops recovering. There has been talk of a liver transplant, however we are not there yet luckily, as this can open a whole lot of other medical conditions. There is no cure, only preventative maintenance, we are forever watching, checking temperatures, and making sure she is happy to help prevent episodes. Genevieve is now a happy cheeky 5-year-old, who attends 4 year old Kinder and is prepping to get ready to start primary school in 2024. Her life involves: regular hospital visits, and admissions, port flushes, follow up appointments with different medical teams. Genevieve has grown up a lot quicker than most kids her age, she is not afraid to show you her scars, talk about her port, or show you photos from her hospital visits. She is very resilient and takes each day the best she can, she does not stand down from a challenge. I know there are people out there a lot worse off than Genevieve, who have spent a lot longer in hospital then she has. But this can only be done because of how wonderful, and what amazing jobs the doctors, nurses, and behind the scenes staff can do, not only for your child, but supporting the parents along the way as well.

I‘ve created this page because I want to make a difference to the lives of sick kids.

The Good Friday Appeal relies on the support of the community to raise funds to ensure that The Royal Children's Hospital is able to continue to provide world class care to patients and their families. From 2022 to 2023 at The Royal Children's Hospital: 90,260 patients presented to the Emergency Department, 50,345 children and young people were admitted to a ward, 407,563 children and young people attended an outpatient appointment, and 14,963 patients underwent surgery. So please help by giving whatever you are able to this fundraiser and help spread the word by sharing this page with your friends, family and networks. Thank you for your generosity, it means a lot!

with heart

Recent Donations

$106.12

Xavier Russell

$30

Koa And Ari & Conor

Thanks for including us! We will always support you Evie and home to see you soon!

$67.82

Anonymous

$106.12

Ozweld Group

$3.2k

Anonymous

❤️ We are so very blessed to have RCH

$106.12

John / Sss Project Management

$27.81

Cindy

$52.92

Paul Keane

❤️

$515

Molly Reynolds

$42.10

Mitchell Street Takeaway Donation Tin

$33.15

Emma Keady

Amazing work, stay strong 💪

$64.67

Anonymous

$11.65

Rebecca Ellis

$106.12

Ozweld Group

$33.15

June And Peter Maher

$54.12

Claney

$33.15

Brent Jeffery

$64.67

Ash, Kylie, Levi & Kiana

$106.12

Patrick Muller

Stay golden❤️

$33.15

Platinum Pool Solutions

$106.12

Gary Edwards

Good luck Evie

$33.15

Julie & Col Watt

You’re a very brave little girl

$33.15

Alison Holland

$54.12

Brett Organ

$33.15

Michael Mason

$43.60

Darwin Mahers

Great work Evie 👍

$54.12

Chris Crow

Keep up the great work, well done 👍

$33.15

Chris Lott

$64.67

Heath Kelleher

$22.58

Damien

$106.12

Nathan Mackison

$54.12

Nemo

🫶🫶🫶

$64.67

Daniel And Tahla

$20

Hannah & Luke Forge

$54.12

Ange Buxton

$106.12

The Mahers

$11.65

Anonymous

$33.15

Matthew Jones

$33.15

Donna Walker

$54.12

Wendy, Darcy & Mckenzie

$106.12

Janice And Ken Cooper

For all the kids

$158.25

Aunty Bree & Uncle Sam

$158.25

Grant Durston

$54.12

Wendy Cooper

$54.12

Cheryl Mears

💕💕

$33.15

Emma Camilleri

$11.65

Melanie Coats

$122.54

Peter Thompson

$106.12

Tania Durston

$208.60

Hd Weld Fab

$50

Jade Morgan

$30

Jo Jarred

$22.58

Marni Hutchinson

$22.58

Tammy Edwards

$106.12

Rudy Tielen

Keep kicking goals Evie!

$208.60

Cathy Cooper

$64.67

The Hempenstall's

Always happy to donate to your fund raising efforts 👌

$64.67

Jeff Armstrong

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Online Funds raised over the years

$ raised since 2024