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Miracle school start for twins Sunny and Vivian Jones
Friday 27th Feb
Article by Herald Sun (Ja 28th, 2019)
Identical twins Sunny and Vivian Jones havenโt ยญalways looked alike and for most of their short lives they would not have been able to swap school uniforms.
Vivian has been taller and heavier than her sister, an ever-present reminder of what Sunny otherwise should have been.
Crisscross scars across Sunnyโs belly tell a story of two liver transplants and a rare disease diagnosed at just 10 weeks old.
But in new school ยญuniforms, which their ยญmother, Minako, has struggled to get her girls to take off, this week the pair will look the same as any other children in the prep playground at ยญEltham East Primary, and Sunny will look just the same as her sister.
โThey are really excited about starting on Wednesday. They couldnโt stop wearing their uniforms,โ Mrs Jones said.
โI told them, โYou are going to get it dirtyโ.โ
Despite the possibility of having to wash new uniforms before school even starts, Mrs Jones said โevery moment is unbelievableโ.
Thereโs still the hospital visits once a month and medication four times a day.
โBut we really couldnโt see the future like this, Iโm just happy to get to this point and treat Sunny like a normal kid,โ she said.
The twins will be among 82,000 Prep students starting school from tomorrow, with holidays ending for 992,400 children across the state.
At just ten 10 weeks old, doctors at the Royal Childrenโs Hospital found Sunny was suffering from biliary atresia, where her liver didnโt properly drain bile, causing it to fail.
โIt was like a science experiment,โ dad Trent said.
โHere was the healthy twin and then ... theyโre not really identical anymore.โ
As they grew old enough to walk, Vivian stood almost a head taller than her sister.
Sunnyโs skin and eyes had a tinge of yellow and her appetite was poor.
And as they neared their third birthday, Sunny was deteriorating.
She had a surgery called the Kasai procedure where her bowel was attached to her liver to try and give some drainage.
But the surgery didnโt work and Sunny was put on the waiting list for a new liver.
Sunny received a transplant, but her body did not accept the organ, and then she received a second donation that brought her back to health.
Two years later, the little girl has grown to the same size as her sister.
โActually, sheโs 3kg heavier,โ Mr Jones said.
โSheโs a little gobble guts.โ
No doubt making up for lost time.
Right now, 1433 Australians are waiting for an organ transplant.
https://www.heraldsun.com.au/news/victoria/miracle-school-start-for-twins-sunny-and-vivian-jones/news-story/eea60c3afa377089410e349298f9b101
ShareSunny had a liver transplant
Wednesday 25th Feb
At 10 weeks old, Sunny was diagnosed with biliary atresia, a rare inflammatory condition affecting new-born babies, that causes a blockage in the bile ducts, the narrow tubes that transport bile to the gallbladder and small intestine.ย ย
Sunnyโs procedure to bypass the failing bile ducts was unfortunately unsuccessful, and she urgently needed a liver transplant.ย ย
While a donor was found, Sunny suffered post-transplant complications and the transplant failed. Doctors put Sunny back on the waitlist.ย ย
โIโll never forget the stress,โ says her father, Trent. โIt was just, โSh*t, are we going to lose her? Howโs this going to go?โ The second time, it was panic stations looking for a donor.โย
Fortunately, Sunny received a second liver transplant within weeks and made it home for her third birthday. She is now nine years old and enjoying life as a typical kid. Sport is her favourite school activity.ย ย
โI think her sister walked about six months earlier than her. She was so, so delayed, but now sheโs bigger than her twin and winning races at school. Itโs like weโve come full circle,โ Trent says. โWeโre very lucky.โย
ShareOur journey - From Birth to Now (Mother's diary in English & Japanese)
Wednesday 25th Feb
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Jones Girls For Good
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You are inspiring us all!!
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Congratulations on your great fundraising effort Sunny and family!
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Koban
ใใชใใๅ ๆฐใซๆ้ทใใฆใใใใจใๆฌๅฝใซๅฌใใใงใใ ใใใฆใใชใใฎๅงใจๅฎถๆใจๅ จใฆใฎๅป็้ขไฟ่ ใฎๅผใพใฌๅชๅใซๅฟใใๆ่ฌใใฆใใพใใใฟใชใใใๆฌๅฝใซใใใใจใใ I am so happy to see you growing up healthy. And I am deeply grateful for the tireless efforts of your sister, family, and all the medical professionals. Thank you all so much.
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Keira And The Tan Family
Thank you so much for sharing your story—this is such a wonderful and meaningful cause!
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Well done on your organising!!
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Good on you girls! Happy Easter
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Suzette Floyd
You’re doing an amazing job fundraising for such a great cause. Awesome effort!
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Keep up the good work.
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Great job girls ,
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An amazing and inspiring story!
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Well done!
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Thank you RCH
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Awesome job
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I love my sisters
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Thanks for saving Sunny RCH. And thank you to her donors. It means the world.
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Great job Sunny!
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Eyles Family
A great cause, go Jones fam ♥๏ธ
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Travis Hall
You’re a superstar Sunny โค๏ธ
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Thank you to the RCH!
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The Wynnes
What a remarkable story Sunny! Jones girls for good, for change, for inspiration! From Ollie & Emmy
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Junko Michael Kazuki
ๅฅ่ทกใใใใใจใ๏ผๅฟใฐใใใ ใใฉใใๅคใใฎไบบใใกใฎ็ฌ้กใซ็นใใใพใใใใซใใใ
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Natalia Orel
Thank you for sharing your story and for your kind little hearts - go jones girls! ๐๐ฉท๐
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Leanne Gardiner
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Aguilar Family
Supporting an amazing cause and the incredible work of the Royal Children’s Hospital. Honoring Sunny’s inspiring story and the unwavering strength of the parents and siblings whose love and bravery are truly inspiring. Love from Scarlett, Elsie, Sarah and Jorge.
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The Hardimans
Such an amazing story Sunny and Viv! The fastest basketballers on the court, you would never know you had an incredible start to your lives. It has never slowed you down!
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Gavin Zauch
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Abbey Pope
Well done Sunny, Viv and Jasmine for raising this money for such a great cause. Love Abbey, Vanessa, Michael, Ben and Will
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Zoe Vdb
Dear Sunny, thank you for being such a great friend. I love being able to experience many fun times with you and Viv. You are such a strong person x
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Mama Mia Cool Banannas
Radical
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Bradley
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ใใใใจใใใใใพใใใใใชใซ็ด ๆดใใใ็ ้ขใๆฏๆดใใฆใใ ใใฃใฆใ็งใฏ่ตคใกใใใฎใจใใซใใฎ็ ้ขใซๅฝใๆใใใใฎใงใใใคใๆ่ฌใใฆใใพใใโบ๏ธ
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Richie
Go Girls!
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Carolyn Jones
I remember this day . We are so blessed to have these girls .
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Yuki Kawai
ใใใงใจใใใใใพใ๐ ใใใใใๅ ๆฐใงๆฅฝใใใใซใในใฑใใใใใฆใๅงฟใ่ฆใใใฎใๆฅฝใใฟใซใใฆใใพใ๏ผ
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Peter Rogers
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Yukiko Iguchi
When I first met Sunny, she was already full of energy, so I remember being surprised to learn about the transplant. May you continue to support each other as a family and spread your energy to those around you. ๅบไผใฃใใจใใซใฏใใๅ ๆฐใใฃใฑใใฎSunnyใกใใใ ใฃใใฎใงใ็งปๆคใฎใใจใ็ฅใฃใฆ้ฉใใ่จๆถใใใใพใใใใใใใๅฎถๆใงๆฏใๅใฃใฆใๅจๅฒใซๅ ๆฐใๅใใฆใใ ใใใญใ
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Naoko Coghlan
ใปใใฎๆฐๆใกใงใใใๅฐใใงใๅฝนใซ็ซใฆใใๅฌใใใงใใใดใผใซใ้ๆใงใใใใๅฟๆดใใฆใใพใ๏ผ
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Tim Carter ใใ
My life was saved too by the kindness of others. So it’s important that we give back when we can. Congratulations to you Sunny on 10 years post surgery! Heart felt wishes to you for all the family for the amazing years that yet lie ahead๐
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