I’ve created this page to help support the hospital after all they have done for Elijah x

Tuesday 18th Feb Elijah has spent 100 plus days in the children’s hospital undertaking 2 open heart surgeries within his first 6 months of life. We visit them regularly for out patient appointments for cardiology, respiratory and optometrist. He was diagnosed with obstructive sleep apnea which the team provided the Cpap machine and everything and regularly monitor him if he needs any changes. While home we are part of the royal Children’s care hub which provides us with a nurse we can contact to help with appointments and coordinate his care with all the specialist or if we need any assistance. I recently contacted them as I noticed Elijah having spasms when he woke and they were able to get us in quite quickly for an EEG which confirmed infantile spasms and treatment under the neurologist was started immediately.  The Royal Children’s Hospital has been amazing since Elijah was born offering life saving treatment for him and they are so supportive and caring and without them there is no way Elijah would be here and thriving after all he has been through. He has Down syndrome and they treat him as a typical child unless something is going on that is relevant to his t21. I can’t thank them enough from the head surgeons all the way to the volunteers who will be an ear to listen or ward grandmas to cuddle your child if you can’t be there. We are so lucky to have this on our door step world class health system that can change your child’s life.  Share

My smiley boy

Tuesday 18th Feb Share