Easter Monday 2019 was the moment our lives were about to change, and we had no idea what we were in for. To this day, the days all rolled into each other: the blur of beeping, signing consent papers, doctors talking, repeating our story a million times, being moved into an ICU room, people visiting, trying to recall what we had done the last few days to work out if anything could be the cause, the lack of sleep, the microsleeps, the tears 😢 It’s something as a parent you never want to go through and would never ever wish it upon anyone. But once you become a 'hospital parent', for me I feel your perspective changes on a lot of things. Genevieve has spent a lot of time at The Royal Children’s Hospital with a lot of different teams looking after her. These teams have all been amazing both during her admissions and before and after. Genevieve has dealt with Gastroenterology, Genetics, Metabolic, Immunology, Allergy, Dietician, Ophthalmology. She has had surgery on her liver, as well as a Port put in. Been put through ultrasounds and x-rays, countless blood tests. Genevieve spent her 1st Birthday in ICU at the RCH. After falling ill and being in Acute Liver Failure. Since then, she has had multiple other admissions both in the ICU and on the Cockatoo Ward. With the help of the specialist teams, doctors and nurses at RCH, Genevieve is still here with us today, happy, and healthy most of the time. We are in regular contact with these teams and will continue to be in contact with them for years to come. Genevieve has a rare condition, where she can go into acute liver failure if she gets a fever. She has a gene mutation called NBAS, which sets this off, however we do not know the tipping point of when the acute liver failure begins or how many times it can occur before it stops recovering. There has been talk of a liver transplant, however we are not there yet luckily, as this can open a whole lot of other medical conditions. There is no cure, only preventative maintenance, we are forever watching, checking temperatures, and making sure she is happy to help prevent episodes. Genevieve is now a happy cheeky 5-year-old, who attends 4 year old Kinder and is prepping to get ready to start primary school in 2024. Her life involves: regular hospital visits, port flushes, follow up appointments with different medical teams. Genevieve has grown up a lot quicker than most kids her age, she is not afraid to show you her scars, talk about her port, or show you photos from her hospital visits. She is very resilient and takes each day the best she can, she does not stand down from a challenge. I know there are people out there a lot worse off than Genevieve, who have spent a lot longer in hospital then she has. But this can only be done because of how wonderful, and what amazing jobs the doctors, nurses, and behind the scenes staff can do, not only for your child, but supporting the parents along the way as well.
Thank you to my Sponsors
$105.50
Koa, Conor & Ari
$52.75
Anonymous
$20
Kelly Armstrong
$565
Goulburn Valley Academy Of Ballet
GVABs contribution to fund-raising efforts!! We held a Good Friday class and had other donations as well! Thanks to the GVAB community for supporting a wonderful cause!
$52.75
Les And Ali Camilleri
$52.75
Eden, Bonnie, Grace And Tyler Maher
Superstars 🌟
$37.20
Mitchell Street Takeaway Donation Tin
$52.75
Ben Lardner
$52.75
Daniel Tahla Camilleri
$10.55
Louise Ambrosini
Hope it helps 💝
$50
Luke James
Well done mate, going to a good cause.
$52.75
Anonymous
$52.75
Cindy Hansford
$10.55
Lauren Mclean
All my love, Loz ❤️
$50
Tyler Teasdale
$52.75
Claney Carter
$180
Wendy And Ross Cooper
RCH go over and beyond to help our precious Little loved ones.💞💞💞💞
$54
Joanne Fichera
$54
Briarna Fichera
$52.75
Adrian Binion
$52.75
Xavier Hutchison
Great work!
$52.75
Tim Dunne
$50
Chris Lott
$105.50
Brad Varapodio
$138.21
Xav Russell
$52.75
Tim Gaylard
Happy Easter 🐣
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Wendy Durston
Donating on behalf of Genevieve Durston. Lots of love from Wendy, Darcy & McKenzie
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Cain East
$105.50
Pat Muller
$52.75
Naomi Thompson
Love from Aunty Nai xx
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Sarah West
$10.55
Sao Tyler
$52.75
Cheryl & Geoff Mears
$50
Marnie Corazza
$52.75
Renee Threlfall
From your Buddy Karly xx
$105.50
Aunty Bree & Uncle Sam
No words can describe how much we love you Evie girl xx
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Steve Earl
$52.75
Jeff Armstrong
$40
Dave Pettifer
$211
Nan Tan
$42.20
Meg O’sullivan
$520
Molly Reynolds
$520
Max Bernardi
$31.65
Jess Moodie
$158.25
Gramps
$15.82
Edwards Family
$10.55
Maestra Niglia
$21.10
Seymour Cathy
$10.55
Miss Coomans
Go you good thing!
$105.50
Janice Cooper
$52.75
Tess & Tom Simkin
$105.50
Hd Weld Fab
$50
Betty Durston
$50
Kevin Currey
$52.75
Harlee Mcrae
Keep smiling and kicking goals Genevieve, you've got this!! All the best dursto's love your work.
$52.75
Nathan Mackison
$105.50
Brendan Lott
Great work Hayden and family
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Matt Evans
$31.65
Anonymous
$105.50
Tim Fleming
$52.75
Rudy Tielen
Keep on kicking goals Evie!
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Zane Hempenstall
$52.75
Zane Hempenstall
Always happy to donate towards this every year. Keep up the great work 👍
$211
Nanny Cath
$17.75
The Key To Piano Concert Donations
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The Key To Piano
Some late donations from the concert 💕
$800
The Key To Piano
An amazing performance Evie, we are so blessed to welcome you into The Key to Piano community 💕
$52.75
Much love Evie ❤️ The Bragge’s love RCH, they do so much for families, they certainly have done a lot for ours too.